Sunday, February 17, 2008

Enjoying a Quiet Sunday

I want to apologize to everyone who has been asking me for a new entry in my blog.  I can’t explain it, but time seems to just get away from me and the next thing I know, a few weeks have gone by without an entry. 

So the past couple of weeks have been filled by life transforming us.  A few weeks ago, we were being led down the path of life without hope and now we’ve been given permission to live again with our new prognosis gifted to us by our second doctor, but even more important than that…the Lord has given us a miracle.  Jay and I have slowly been allowing ourselves to die and now we are feeling alive again.  And I know that this may not last forever, but I sure am happy that we have more time than we thought.  There is nothing greater than the gift of time.

Anyway, Jay has a PET/CT scan at the end of this month and once we have that information, we are ready to ship our files to City of Hope for review.  I’m not sure when we will actually get to meet a doctor, but I am looking forward to that process.  I’m sure that Jay’s current oncologist has done the best he can given the fact that he is the only oncologist for hundreds, if not thousands, of patients…but it is time to allow doctors who specialize in many areas of oncology to take a look at Jay’s case and see what they can do for us.  It just feels like he will receive better care there and my honey deserves the best care possible.  I want no regrets…and this will help me to not have any regrets through this process.

On another note, my niece Alyissa wrote the most beautiful email today and I must share it with everyone.  She sent an email to my mother, her Grandma who is her caretaker from the age of 6 months until now in her tweenyears, telling her of what she is thankful for.  This is what she said:

what i am thankful for...  iam very thankful for my uncle who shows courage and compation and nothing you say will hold him back. Also for my aunt who has been tough and perfect her whole life.  I am also very very thank ful for my nana she is the sweetest person. But iam esspecally thanful for my grandma who showed me how to care and how to work hard and i love her and no body is like her. She is the most sweetest person and loving as she is. – Alyissa

 

This young lady has such a wonderful heart.  She loves her Uncle Jay, whom she refers to as having courage and compassion.  He is a hero in her eyes, and I have to agree.  And then she mentions her Aunt, that would be me, and I don’t know where she gets the idea that I have lived a perfect life, but I am thankful that she looks up to me at all.  Her Nana, my Grandmother, who has always been a place of refuge for all of the family.  And then Aly mentions my Mom, her Grandmother, who has taken care of her since she was a baby because her parents, my brother and his girlfriend, have never been able to care for Aly the way a child needs to be taken care of.

 

Aly has seen a lot in her lifetime so far and I am impressed at how she has met every challenge in her life head on.  A lot of that has to do with my Mom and how she has helped Aly to cope with her life circumstances.  My Mom has seen a lot in her lifetime so she knows what she is talking about.  Aly has allowed compassion and empathy to reside in her heart and she has an insight into life that I don’t think I ever had at her age…and I went through a lot as well, but still I don’t think that I understood how life works like Aly does.  She is a very special girl.  I am so very proud of her.  I see a lot of me in her but she is definitely stronger, and impressively, she is her own person.  What a comfort to know that there is a person on this earth like her.

 

 

 

 

3 comments:

lv2trnscrb said...

Jamie, thanks for the update; you sound positive about things with Jay and his health; wishing you the best as you prepare for his appt whenever it is at City of Hope. I agree wit you; cover all the bases you can; don't let any stone unturned as you seek the right treatment/doctors, etc for Jay.

What a sweet niece you have and a very insightful compassionate letter she wrote!

take care of yourself

betty

monicasmemoirs said...

It was nice to get the update.  However, I also understand the need to step away at times.

I hope all works out and the appointment goes well at the City of Hope.

Monica

ajquinn354 said...

Jamie you've been in my thoughts as has your Jay, so glad to see an update on how things are going for you both....indeed a blessing that you were referred to the City of Hope....that indeed says it all (HOPE).  Know this has been such a tough time for you two so I'm pleased to see the lift in your heart with your words and that you are both are feeling alive again.  Never give up, miracles happen every day dear. Yes indeed Alyissa wrote a very touching and loving e-mail about you both and her family...what a  treasure her e-mail is for Jay and you, she sounds like a wonderful, loving and caring niece. Bless you both, you both are in my thoughts and prayers.  Arlene (AJ)